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The Notebook for Wellbeing & Health Care

“I have never seen anything like this, that has all the information organized in one place. This is great.”
–An Experienced Social Worker


Have the following ever happened to you?

  • You are sitting in a doctor's office, filling out information about your illness history, thinking “I have to do this again?” or wonder, "Am I remembering everything correctly?" 

  • You feel flustered, even overwhelmed, by all the information coming at you about your health?

  • Do you think, "What if I'm really sick, in the emergency department, and can't answer any questions? How can my family access to my current health information?" 

  • Or you suddenly are taking care of a sick family member, you know nothing about their health care, you do not have their computer passwords, and you have to pick up the pieces?

  • Are you or a family member seeing multiple doctors and other professionals and your care risks getting fragmented?

In all these situations, having your health information organized, in one place, will help you take control of your own care or your loved one’s care. You will be kind to your family if they need to help you. Consider organizing your own 3-ringed binder with your key printed health information or consider using the ready-made Notebook for Wellbeing & Health Care

BENEFITS OF THIS PRACTICAL NOTEBOOK, A SELF-CARE TOOL:

  • Keeps essential personal health information in one safe place (three ring binder).

  • Includes unique cues on what to add.

  • Endorsed by patients and physicians in research trials as helpful, useful, and a tool for organizing health information.

  • Is ready for use in planned and emergency health care visits.

 

“Dr. Siebens gave me back the power over my health care by giving me a Notebook. I had one place to keep everything from different doctors including lab tests. It was wonderful.”

–A Patient Newly On Medicare Insurance After Being Uninsured


“Dr. Siebens, with her Notebook, gave me the confidence to advocate for myself with my other providers. I was able to keep myself on a critical medication I needed to treat my HIV status. It likely saved my life.”

–A PATIENT with several medical problems

 

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Research

The Notebook for Wellbeing & Health Care was developed and refined through two inpatient quality improvement projects published in 2001 and 2005. Then two additional published studies in outpatient clinical programs garnered positive professional, patient, and care partner feedback on the Notebook.

CASE 1

The Notebooks were given as part of an outpatient class to help women being treated for breast cancer, who have mild thinking problems. The program successfully utilized the Notebook for several years.

CASE 2

The Notebook for Wellbeing & Health Care (formerly called Siebens Health Care Notebook) was provided to patients in a clinical program of care coordination for individuals with Parkinson’s disease. Nurse managers customized each Notebook and worked with patients over the telephone. A 2015 study describing the research protocol evaluating this program is available online. Care quality improved when the program was evaluated in a randomized controlled trial and results were published in 2019, 2020, and 2022 (see Evidence). Feedback on the Notebooks indicated they were user-friendly, person/patient-centered, and organized.


See three initial studies from 2000 – 2005 using the Notebook for Wellbeing & Health Care concept.

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